Monday, January 30, 2012

Did I stay at a Holiday Inn Express?

So its been almost a week since seeing the Oncologist and I am acting like I have a medical degree...(overnight)  You know I wrote down all the questions to ask (Thanks to Sue) and had myself set to machine gun fire questions at the doctor.  Then after being poked and prodded in places I wasn't excited about...I walked away with more questions.  Nothing so significant that I need to run up to UAMS and ask but...none the less. 

DAMN HPV....you sure do create problems!  My biggest question is....Was this missed over the last year of craptastic procedures and surgeries? Or is this new within the last 6 mos since recheck?  Nobody has given me an answer to that, maybe they are afraid I will place blame.  All I heard the other day was that is a derivative of the HPV.  I guess there isn't an answer to be had or no one wants to say...but at least it was caught and caught early.

Still nervous about what will happen after but trying to breathe everyday and know what is in my control and what isn't.  Being nervous for what will happen isn't in my control...or at least it hasn't been as yet.  I tend to make myself nervous about the stupid things....not the chemo or radiation but...when is it happening and will I still be able to do this or that...although I am nervous about the actual surgery, I am trying to not watch Discovery Health or search surgery horror stories...that can just freak you out!

Everybody has a opinion on having your teen vaccinated against HPV, I say do it!  I wouldn't be where I am right now if the vaccination was around back then.... But like I said...That's my opinion.

Wednesday, January 25, 2012

January 25, 2012

My day at the Rockefeller Cancer Institute

Well I would say my day went much better than expected considering I was prodded several times. For those of you that work at UAMS...I did not experience the Disney Pointing rules.

I got to the center @ 1:30 pm to experience the "welcoming" the cancer center has to offer. After a nice normal waiting period that you always have...I checked in and then went upstairs to the Women's Clinic.

I am very impressed with the staff and doctors there. Dr. Burnett was excellent, I felt very comfortable and knew I was in great qualified care. Soon I found out I have Koslopus squamous cell kancer stage 1.

I will be having surgery on February 21st by the hands of Dr. Burnett and Mr. Roboto... It will be a robotic surgery with 5 small incisions. Recovery time is much less than regular but the bad side will be having my own urinary catheter bag for two weeks.

They will be also taking all my pelvic lymph nodes associated with my Koslopus. I will not know about radiation or chemo until after the pathology comes back from surgery.

All and all I feel a little relieved, still nervous but it all seems a little less scary thanks to UAMS.

Tuesday, January 24, 2012

40,000 or so mile check up.....

1/24/2012

I find myself wondering and asking a bunch of questions to the squirrels in my head. Problem is all the squirrels are busy this time of year and don't have much time for me to bother them with my problems. I have said the word Vagina more in the last two weeks than probably ever in my life. So going forward you will hear/read "Koslopus" or "Vjay-jay" when referring to my problem parts. These are two words I have taken and will be using appropriately thanks to Chelsea Handler.

I started my quest for the 40k mile check up a little too late...I should have followed routine maintenance checks like I do for the car on my body. Lesson learned, could have saved myself a bunch of trouble, money and time if I didn't let this go so long.

To save myself all the lectures, I won't tell you how long it had been since I enjoyed the company of a Licensed Gynocologist but it had been a while. :)

I finally went to visit a fine Koslopus doctor in September of 2010 and from that point on the doctor and I have seen each other more than I have seen most of my family... So #1 that's a lot and #2 I don't see my family near enough!

In September 2010, my tests came back abnormal or wonky...from there I had a biopsy (Oct 2010)that found high grade dysplasia CIN 3. From there I then enjoyed a nice laser surgery(Nov 27, 2010) where they did a Yag Cone procedure. After a shorter than expected recovery time I was then taken back in for a full/total hysterectomy.(Dec 6,2010) Let me tell you that was not fun, Stacy helped me take full advantage of the pain pump after surgery. I can be the first to admit that I am a wimp, it hurt and was painful for quite a while.

6 month recheck....July 2011.... More wonky results, time for another bibopsy (My Big Fat Greek wedding reference) The licensed doctor was unable to get a viable biopsy. At that point he thought it might just be scar tissue from previous surgeries and opted to wait and recheck in December 2011. Well recheck time came and guess what....WONKY Koslopus! So surgery scheduled to knock me out and dig around for those little evasive cellular monsters. All I can think about is some little monsters like on the Mucinex commercials running around going " Nah, nah, nah!"

Pathology came back on January 13, 2012 as Vjay-jay squamous cells present. (I don't know who thinks that is a present)

So now I am headed to see Dr. Alexander Burnett at the Rockefeller Cancer Institute tomorrow January 25, 2012.

We will see what happens next....