Well, I gave up kancer. My surgery was on fat Tuesday so that was the plan. I got my pathology back and it seems as I am on the right track. The lymph nodes were negative and the borders were clean so that means no treatments.
I am very happy with the outcome but the road to recovery has not been a smooth path. I have been in constant back pain since the surgery. I have been told several different explanations but the pain has been getting worse not better. I ended up in the emergency room last week, the pain was so bad I couldn't do anything. They deducted that I have an infection from surgery and that is what is causing all the pain. So they gave me new antibiotics and more pain meds. It's now been 4 days of the new antibiotics and still no pain relief. Next appointment is scheduled for thursday am.
Monday, March 12, 2012
Saturday, February 25, 2012
Bright and Early
Maybe I should say not so bright... I have to be at UAMS to check in @ 5 am Tuesday morning. Looks like I will probably go back for surgery at ~ 8:30.
Awake...
Finally out of the anesthesia and focus fog. I had a headache for 2 days solid... I think it was from being held upside down for nearly three hours. Much better today. I had surgery on Tuesday around 8 am. Dr. Burnett and Dr. Sills were excellent, best staff all the way around. They say the surgery went well, they removed all lymph nodes and a third of my Koslopus. Won't know about the pathology until probably next week some time.
I am still having quite a bit of pain but much better from the other day.
Will update again when I am more coherent.
I am still having quite a bit of pain but much better from the other day.
Will update again when I am more coherent.
Wednesday, February 8, 2012
My head is crazy!
Thankful I am for great friends who have shown such care for me during this time of chaos.
I know I have a lot to be grateful for and I am nowhere near a situation like so many others out there fighting the kancers.
Yesterday I had my pre-anesthesia screening at the UAMS and all I can hope is that the RN I saw yesterday has nothing to do with my surgery next week. 😊 She couldn't get my name right, called my doctor by my name and thought I was having a hysterectomy. Lord, if she is involved next week please check to see if I come out of surgery with both legs! I waited for the incorrect Disney Point to top it off...as she passed me on to the laboratory vampires.
I was trying not to get crazy when she said "Will you accept a blood transfusion?" "you know that area is very vascular and it is needed frequently.".
Attack of the crazies in full on mode!
So the rest of the day, I worried and had the crazies uhaul there butts right up in my head. They have now officially moved in and unloaded the truck.
The procrastinator in me put off all kinds of work, laundry and packing until late last night. With all of this I make myself miserable and inconvenience the one that matters to me most.
But I made it thru and I am now headed to Boston for a couple days of unenjoyable fun!
I know I have a lot to be grateful for and I am nowhere near a situation like so many others out there fighting the kancers.
Yesterday I had my pre-anesthesia screening at the UAMS and all I can hope is that the RN I saw yesterday has nothing to do with my surgery next week. 😊 She couldn't get my name right, called my doctor by my name and thought I was having a hysterectomy. Lord, if she is involved next week please check to see if I come out of surgery with both legs! I waited for the incorrect Disney Point to top it off...as she passed me on to the laboratory vampires.
I was trying not to get crazy when she said "Will you accept a blood transfusion?" "you know that area is very vascular and it is needed frequently.".
Attack of the crazies in full on mode!
So the rest of the day, I worried and had the crazies uhaul there butts right up in my head. They have now officially moved in and unloaded the truck.
The procrastinator in me put off all kinds of work, laundry and packing until late last night. With all of this I make myself miserable and inconvenience the one that matters to me most.
But I made it thru and I am now headed to Boston for a couple days of unenjoyable fun!
Monday, January 30, 2012
Did I stay at a Holiday Inn Express?
So its been almost a week since seeing the Oncologist and I am acting like I have a medical degree...(overnight) You know I wrote down all the questions to ask (Thanks to Sue) and had myself set to machine gun fire questions at the doctor. Then after being poked and prodded in places I wasn't excited about...I walked away with more questions. Nothing so significant that I need to run up to UAMS and ask but...none the less.
DAMN HPV....you sure do create problems! My biggest question is....Was this missed over the last year of craptastic procedures and surgeries? Or is this new within the last 6 mos since recheck? Nobody has given me an answer to that, maybe they are afraid I will place blame. All I heard the other day was that is a derivative of the HPV. I guess there isn't an answer to be had or no one wants to say...but at least it was caught and caught early.
Still nervous about what will happen after but trying to breathe everyday and know what is in my control and what isn't. Being nervous for what will happen isn't in my control...or at least it hasn't been as yet. I tend to make myself nervous about the stupid things....not the chemo or radiation but...when is it happening and will I still be able to do this or that...although I am nervous about the actual surgery, I am trying to not watch Discovery Health or search surgery horror stories...that can just freak you out!
Everybody has a opinion on having your teen vaccinated against HPV, I say do it! I wouldn't be where I am right now if the vaccination was around back then.... But like I said...That's my opinion.
DAMN HPV....you sure do create problems! My biggest question is....Was this missed over the last year of craptastic procedures and surgeries? Or is this new within the last 6 mos since recheck? Nobody has given me an answer to that, maybe they are afraid I will place blame. All I heard the other day was that is a derivative of the HPV. I guess there isn't an answer to be had or no one wants to say...but at least it was caught and caught early.
Still nervous about what will happen after but trying to breathe everyday and know what is in my control and what isn't. Being nervous for what will happen isn't in my control...or at least it hasn't been as yet. I tend to make myself nervous about the stupid things....not the chemo or radiation but...when is it happening and will I still be able to do this or that...although I am nervous about the actual surgery, I am trying to not watch Discovery Health or search surgery horror stories...that can just freak you out!
Everybody has a opinion on having your teen vaccinated against HPV, I say do it! I wouldn't be where I am right now if the vaccination was around back then.... But like I said...That's my opinion.
Wednesday, January 25, 2012
January 25, 2012
My day at the Rockefeller Cancer Institute
Well I would say my day went much better than expected considering I was prodded several times. For those of you that work at UAMS...I did not experience the Disney Pointing rules.
I got to the center @ 1:30 pm to experience the "welcoming" the cancer center has to offer. After a nice normal waiting period that you always have...I checked in and then went upstairs to the Women's Clinic.
I am very impressed with the staff and doctors there. Dr. Burnett was excellent, I felt very comfortable and knew I was in great qualified care. Soon I found out I have Koslopus squamous cell kancer stage 1.
I will be having surgery on February 21st by the hands of Dr. Burnett and Mr. Roboto... It will be a robotic surgery with 5 small incisions. Recovery time is much less than regular but the bad side will be having my own urinary catheter bag for two weeks.
They will be also taking all my pelvic lymph nodes associated with my Koslopus. I will not know about radiation or chemo until after the pathology comes back from surgery.
All and all I feel a little relieved, still nervous but it all seems a little less scary thanks to UAMS.
Well I would say my day went much better than expected considering I was prodded several times. For those of you that work at UAMS...I did not experience the Disney Pointing rules.
I got to the center @ 1:30 pm to experience the "welcoming" the cancer center has to offer. After a nice normal waiting period that you always have...I checked in and then went upstairs to the Women's Clinic.
I am very impressed with the staff and doctors there. Dr. Burnett was excellent, I felt very comfortable and knew I was in great qualified care. Soon I found out I have Koslopus squamous cell kancer stage 1.
I will be having surgery on February 21st by the hands of Dr. Burnett and Mr. Roboto... It will be a robotic surgery with 5 small incisions. Recovery time is much less than regular but the bad side will be having my own urinary catheter bag for two weeks.
They will be also taking all my pelvic lymph nodes associated with my Koslopus. I will not know about radiation or chemo until after the pathology comes back from surgery.
All and all I feel a little relieved, still nervous but it all seems a little less scary thanks to UAMS.
Tuesday, January 24, 2012
40,000 or so mile check up.....
1/24/2012
I find myself wondering and asking a bunch of questions to the squirrels in my head. Problem is all the squirrels are busy this time of year and don't have much time for me to bother them with my problems. I have said the word Vagina more in the last two weeks than probably ever in my life. So going forward you will hear/read "Koslopus" or "Vjay-jay" when referring to my problem parts. These are two words I have taken and will be using appropriately thanks to Chelsea Handler.
I started my quest for the 40k mile check up a little too late...I should have followed routine maintenance checks like I do for the car on my body. Lesson learned, could have saved myself a bunch of trouble, money and time if I didn't let this go so long.
To save myself all the lectures, I won't tell you how long it had been since I enjoyed the company of a Licensed Gynocologist but it had been a while. :)
I finally went to visit a fine Koslopus doctor in September of 2010 and from that point on the doctor and I have seen each other more than I have seen most of my family... So #1 that's a lot and #2 I don't see my family near enough!
In September 2010, my tests came back abnormal or wonky...from there I had a biopsy (Oct 2010)that found high grade dysplasia CIN 3. From there I then enjoyed a nice laser surgery(Nov 27, 2010) where they did a Yag Cone procedure. After a shorter than expected recovery time I was then taken back in for a full/total hysterectomy.(Dec 6,2010) Let me tell you that was not fun, Stacy helped me take full advantage of the pain pump after surgery. I can be the first to admit that I am a wimp, it hurt and was painful for quite a while.
6 month recheck....July 2011.... More wonky results, time for another bibopsy (My Big Fat Greek wedding reference) The licensed doctor was unable to get a viable biopsy. At that point he thought it might just be scar tissue from previous surgeries and opted to wait and recheck in December 2011. Well recheck time came and guess what....WONKY Koslopus! So surgery scheduled to knock me out and dig around for those little evasive cellular monsters. All I can think about is some little monsters like on the Mucinex commercials running around going " Nah, nah, nah!"
Pathology came back on January 13, 2012 as Vjay-jay squamous cells present. (I don't know who thinks that is a present)
So now I am headed to see Dr. Alexander Burnett at the Rockefeller Cancer Institute tomorrow January 25, 2012.
We will see what happens next....
I find myself wondering and asking a bunch of questions to the squirrels in my head. Problem is all the squirrels are busy this time of year and don't have much time for me to bother them with my problems. I have said the word Vagina more in the last two weeks than probably ever in my life. So going forward you will hear/read "Koslopus" or "Vjay-jay" when referring to my problem parts. These are two words I have taken and will be using appropriately thanks to Chelsea Handler.
I started my quest for the 40k mile check up a little too late...I should have followed routine maintenance checks like I do for the car on my body. Lesson learned, could have saved myself a bunch of trouble, money and time if I didn't let this go so long.
To save myself all the lectures, I won't tell you how long it had been since I enjoyed the company of a Licensed Gynocologist but it had been a while. :)
I finally went to visit a fine Koslopus doctor in September of 2010 and from that point on the doctor and I have seen each other more than I have seen most of my family... So #1 that's a lot and #2 I don't see my family near enough!
In September 2010, my tests came back abnormal or wonky...from there I had a biopsy (Oct 2010)that found high grade dysplasia CIN 3. From there I then enjoyed a nice laser surgery(Nov 27, 2010) where they did a Yag Cone procedure. After a shorter than expected recovery time I was then taken back in for a full/total hysterectomy.(Dec 6,2010) Let me tell you that was not fun, Stacy helped me take full advantage of the pain pump after surgery. I can be the first to admit that I am a wimp, it hurt and was painful for quite a while.
6 month recheck....July 2011.... More wonky results, time for another bibopsy (My Big Fat Greek wedding reference) The licensed doctor was unable to get a viable biopsy. At that point he thought it might just be scar tissue from previous surgeries and opted to wait and recheck in December 2011. Well recheck time came and guess what....WONKY Koslopus! So surgery scheduled to knock me out and dig around for those little evasive cellular monsters. All I can think about is some little monsters like on the Mucinex commercials running around going " Nah, nah, nah!"
Pathology came back on January 13, 2012 as Vjay-jay squamous cells present. (I don't know who thinks that is a present)
So now I am headed to see Dr. Alexander Burnett at the Rockefeller Cancer Institute tomorrow January 25, 2012.
We will see what happens next....
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